Grounding my feet in the sand

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So I’ve seen a lot of beaches since I escaped the hospital but today I was challenged to touch the sand with my very own feet. It kinda freaked me out! 😱

Walking the Esplanade along Redondo Beach
Boy did they bundle me up, I can barely move my arms!
This esplanade goes on forever! Even daddy needs a break sitting on that bench behind me.
Redondo Beach Pier in the background
Yay, bye bye fluffy fleece jacket
Getting closer to the beach!
There’s an astronaut near me 👨‍🚀
I’m free from the stroller!
That sun is bright!
I’m not sure I like the feel of wet sand on my feet. Someone save me please, Po Po carry me!
My first time touching sand! Whoaaaaaa New feels!
My grandparents believe that I need to ground more with the natural earth via grass, sand, mud etc Maybe it will help me to sleep better 😅
Ooooo waves are so close by
Finally on the beach rather than just looking at it from afar
These eyes. Sans sunglasses 😑
Heyyyyy I want to hold hands too!
Watching my cousins on the swing at Veterans Park right next to the Esplanade
One day I’ll be able to go on a swing too. Thanks Daddy for letting me be part of the fun 😊
Sup
Another lovely beach sunset
Bye bye 🌞

✌🏼Fight On!✌🏼

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What a busy day today! First we went to CHLA for a follow up appointment with Cardiology to check out my heart. The doctor was saying something about how my pulmonary hypertension seems to have gone away. I think that’s a good thing. One less medication I don’t have to take!

Waiting to be called for the echocardiogram

Then off to feeding therapy

I’m pretty sure this stuff does not belong in my mouth
Gigantic gingerbread house set up in front of the hospital cafeteria. I hope the ants don’t find this.
A visit to Mommy’s school!
I couldn’t figure out the USC Fight On sign with my hand but I got 4 fingers up instead. Close enough. That just means double Fight On right?!?!
I’m feeling very brainwashed at the moment
Hello Hippo. Grandma thinks you are a buffalo. 🤔 That’s going to be your new name. Hi Buffalo 👋🏻
This is a huge campus!
Mommy says University Village changed drastically. Apparently it use to be a dumpy dark dirty old food court.
Even the elevator buttons have school pride on it!
Korean food at USC Village
More visitors and mini uprights!!! Hi Mommy’s friends!