The Lady with the Guitar Returns

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Today was a day packed with therapies galore (speech, music, and massage for me and mommy) but the highlight was definitely when the Music Therapist sang at my bedside. I tried carrot puree for the first time today! Speech therapy came by and put little bits on my fingers and hands since I already put […]

Astral Try #2

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The uprights are trialing me again on the Astral go home vent but with increased / different vent settings that will hopefully support my breathing better. PIP increased to 36 and PEEP back to 12 where I started when I first got to CHLA 🤦🏻‍♂️ I’m feeling a little better with these settings but still […]