✌🏼Fight On!✌🏼

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What a busy day today! First we went to CHLA for a follow up appointment with Cardiology to check out my heart. The doctor was saying something about how my pulmonary hypertension seems to have gone away. I think that’s a good thing. One less medication I don’t have to take! Then off to feeding […]

My First Christmas at Home

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One year ago from today I was still in the NICU at Hackensack, NJ. I was on track and suppose to go home a few weeks later but hit the wall with pulmonary hypertension and a downgrade back to the CPAP mask. It was a frustrating and angry time for me. I didn’t know why […]