It’s like running a marathon but 24/7

Posted on

I haven’t been doing very well since I was transitioned to the Astral go home vent. The respiratory team made some changes to the vent but I’m still on a PEEP of 8 and feeling very air hungry. It’s even hard work for me to sit up even though I usually love that view to […]

Astral away!

Posted on

With a PEEP (air pressure support) of 8, I’ve been working major overtime to breathe, sweating a lot more, and napping more than my usual Party Time Ein mode. I was so fatigued, I had to lean on daddy’s shoulder. Napping with mommy  “Please leave me alone, go away and stop pricking my heel for […]